One of the most important things that we who suffer from Foreign Accent Syndrome wish to do is to find out not only why we are having the problems that we do, but also to help grow the collective understanding of not only of the disorder but most especially the PEOPLE who are currently suffering, their care, their care-givers and loved ones and those who have yet to step into those positions.
Therefore, I am very happy to add to my blog these links to these news stories which were done by JAX TV station in Florida. It is exciting to see some media attention being given to the disorder. Let some people who believe that this is not a “real” problem become less ignorant by getting a little exposure and also help those who are currently dealing with similar stories to take heart.
Here are recent videoes done with fellow Foreign Accent Syndrome friends of mine done by local Florida news TV stations.
This first one is a longer raw interview with Dr. Jack Ryalls from University of Central Florida. He is well known for his expertise in this field of study of the very rare disorder. So it is especially good to hear his insights in this more lengthy piece on what is involved in Foreign Accent Syndrome from his perspective. Interview with Dr. Jack Ryalls Fox30
Okay, so you may be asking yourself, “what is a frisbee squirrel anyway?” Let me explain. You know when those furry little varmits get particularly active and don’t watch out when they cross the street. They can meet up with an automobile who cuts short their nut-gathering life right there in the middle of the road.
Should this happen in an area that is not frequented by road-kill restraunteers (like Kentucky or Arkansas) or buzzards, a few more car tire passes placed across the remains and a couple of days of drying and stiffening; then; wallah… you have yourself a frisbee squirrel.
Now that you have the proper definition, you can better appreciate why I chose to use the “frisbee squirrel” as an accurate descriptor for my body on some days. On really, excessively weak days I even say “transparent” frisbee squirrel day implying run over even more!
If this were a Bugs Bunny cartoon, maybe someone could just pick me up, shake me a little from side to side, and then blow me back up (like a balloon) into shape!
As it is, I have discovered that severe Chronic Fatigue makes my Foreign Accent Syndrome much worse (so no talking), I am too weak to do anything (so bedrest) and confusion makes reading and writing difficult. That is why you may not hear or see me much, but will see … It’s a Frisbee squirrel day @@=~
Once again the Twitter monitoring is showing me that there is another surge in interest in Foreign Accent Syndrome. Today I read this article dated 12/20/2009 in The Examiner.com by Charlene Collins
Once again, many people doubt that such athuds could happen and say some cruel things in response or make jokes about how they wish they could suddenly have an accent of their choice. However, it does seem to me that the tide is turning. There seem to be a growing number of people who are genuinely interested, who actually show empathy by stating that they couldn’t imagine what it would be to live with such a disruption to their daily life.
I feel sorry for those who simply can’t accept it. I think that the people who respond with cruel remarks such as “she’s just doing it for attention”, “she sounds like a retard”, or “he’s obviously faking it” are really scared to admit that it could happen… So suddenly and unexpectedly…and no one knows why… and it could happen to anyone! This isn’t a regional, racial, sexual, or economic malady. It’s an equal opportunity shocker that affects not only the person afflicted, but everyone in their family and social circle!!
In order to help get the word out and misperceptions addressed a few of us FAS endurers are working together to gather facts about our individual cases, encourage scientific and medical study and research and then document and disseminate truthful, 1st-hand information. With that in mind, I wrote the following comment in response to the article I mentioned earlier:
I know that Foreign Accent Syndrome is real because I am living proof! This is really a pretty good introduction of what it is. However, I would disagree with the number of cases medically documented. You state 20 ever in the world and I know of 13 right now and I believe there are more. However it is commonly accepted that it is extremely rare and more like 60-100 cases ever since the original case was documented.
As a former pre-med student I am constantly amazed at the lack of understanding that we have of the human brain! Truly, we are fearfully and wonderfully made!
My own case started May 12,2009 after an exceptionally severe migraine and spreading facial numbness on one side. CT and MRI did not show a stroke yet something profound DID happen for although the facial numbness and headache were gone in days, I now speak like an eastern European, Swedish/French person speaking English depending on what words I am saying and interpretation of the listener.
Look around on my site (search fas) for lots of postings about living with this when not even many medical specialists have even
heard of it before.