Today I was given a surprise phone call by producer Dan at the 93.1 FM WIBC,
asking if Terri and Joe of the morning team could have me on this morning for a brief interview/ check-in. It has been three weeks since I was on the program and I have had a lot of people asking about why I wasn’t on the radio. I told them I don’t think it is “news”, but it is fascinating. So when I received the phone call, I readily agreed. Plus I just love Terri Lynn Stacey and Big Joe Stayzniak. They are two of my favorite people.
Here is the interview: 09-0728-WIBC-no07-sm
Basically they recapped a bit for those who had never heard me speak on the radio before and also talked a bit about the brown recluse spider bite I received recently. The funniest part of the interview was the very beginnning before I was even put on live with them. Joe was frantically trying to put back together Terri’s microphone which had a missing screw. I was cracking up!! Terri had a screw loose. Imagine?!
I was asked by several different people why I didn’t talk on WIBC radio this week. I told them that there was just too much happening in the world for me to even fit in the normal Tuesday morning time slot. Blessed boss of WIBC Tom Sevarino lost his battle with cancer. The “gloved one” Michael Jackson’s memorial service planned in California had all of the police and media in a tizzy. How could a small town gal with a rare disorder that is unknown by even much of the medical community compete with that? LOL. Nah, the radio producer even was kind enough to call to apologize, but I totally understand. News was happening.
It was funny, because one of my friends tweeted me fearing that she had missed the time slot of the report. She usually is driving into work at that time and finds the topics we discuss interesting. It has been eye-opening to see how very many people are familiar with Eastside Ellen’s foreign accent syndrome story. They all tell me that it is fascinating, which it is. I’ve run into people at the grocery store, church, the bank and recently the hospital who ask if I am Eastide Ellen. All of them smile!! Yes! They are also so kind as to show true empathy. These people are not just listening into a report, but are identifying with it. What would they do if this happened to them? That’s part of what I love about growing up and living in central Indiana; people really care about their neighbors.
At this point I am unsure as to whether I will continue to report at WIBC on Tuesday mornings. Perhaps the story is no longer newsworthy. I don’t know how programming decisions are made. All I do know is that I am going through something that is so very rare that even mainstream medical doctors don’t know how to handle it. There is an opportunity for pioneering medical research to be made, and I am the kind of person that will share it all. I totally believe that God remains in control of every detail. I trust that there is an ultimate good that will be realized as a result of this trial and the events that are happening even now. I derive great joy in knowing that there are people who are standing beside me in both “good thoughts” and prayers, who are as perplexed as I am. and who are as fascinated and dumbfounded as even the local medical community. We may not know the answers yet, but it is comforting to know that Hoosiers join together in an attempt to help each other.
It is for just such a reason that being on WIBC 93.1 FM “the News and Talk of Indiana” has been a great source of comfort, inspiration, intrigue and humor in a time that otherwise could threaten to undo a person. I am so very proud to call myself a Hoosier — albeit one that sounds like some kind of foreigner. I am still a farmer’s daughter, even though my voice may stand out a bit more when calling in the cows : D
I have been enjoying one of the great benefits of social media lately. That is, reconnecting. I have rediscovered old high school classmates and neighbors. Once I find one, then they have a couple more that they have to suggest and the “friends” list grows.
This demonstrates to me not only the power of today’s social media and the world wide web, but also how much of an impact just one person can have. As my friends list continues to grow I am not out to place additional names on some list for the sake of numbers. Rather, I am amazed at the number of people who have touched my life or shared my life with me in some way.
It is not just the world wide web that connects us… No… it was far before computers were even invented that we were connected. God the Father intended for us to go out into the world and share our lives with one another. We make an impact where we are and with whom we are surrounded. That is why I like to think of myself as a “Walmart Missionary”… I will use the opportunity of standing in a shopping line to say hello to a total stranger and share a piece of life with them. Oh how marvelous it is when we are talking about the joys of living and walking in the ways of the Lord!
Today’s interview with Terri Stacey and Big Joe Stayzniak on WIBC 93.1 FM can be heard at the following link.
However, before you listen let me explain one thing. Earlier in the morning show, Joe and Terri were talking about a bit of a mystery that is happening at the radio station. Newsman Joe Ullery noted having found two french fries lying there at the station. Previously, there were found two fingernails (of the press-on variety) that had a FRENCH manicure. I found it funny that Joe Ullery has almost made a shrine of the fingernails because they make him feel happy. Why does Joe keep “noticing these things but not disturb the scene”? So it was my bright idea to mention a possible solution to the mystery. LOL
Summary: refer jokingly to the French Connection mystery at the radio station, excited to see neurologist tomorrow for EEG results, singing is fine but speaking is accented, different parts of the brain? Speech therapy scheduled to start in two weeks. When you dream do you speak with your accented voice? Working on words to make it better. Is the accent getting better or not? One step at a time. Happy July 4th everyone! Have a “Bangin’ Time”!
I met with a new friend tonight who I call “Fishers Fran.” We both have Foreign Accent Syndrome, (an extremely rare
medical condition that causes a person to speak with a foreign accent that is not their own) and live in the Indy area.
Fran had some friends tell her about hearing me on the WIBC 93.1 FM radio spots I’ve been doing over the last couple Tuesday mornings by invitation of the Morning Show personalities Terri Stacy and Big Joe Stayzniak. Her friends told her that she must listen. Then Fran took the initiative to call the radio station and they passed along my name and told her I was on FaceBook where she sent me a message.
Last Tuesday evening when we first spoke by phone, Fran had her normal voice. Her foreign accent came on suddenly for her along with left side neuromuscular symptoms back in 2005. Unlike me, her regular voice has returned, but she does have episodes where the accent returns for a few days. In fact she recently was interviewed about her Foreign Accent Syndrome story in an article for the April Issue of a magazine that is popular with the Catholic faith. I am sorry that I do not have the publications name right now, but I will edit this post when I have it.
Today she called to say that her voice has “flipped” so that she has the accent again. Her voice does have strong similarities to my own, but is definitely different. She can say some long “A” sounds that I cannot, and I can pronounce the “SK” sound that she cannot. So it was very enlightening as we met at a northeast side Steak and Shake for a friendly supper. Many patrons stared as we spoke and laughed together. Our waitress asked the inevitable “where are you from” question. To which we both smiled and replied “where do you think?” “Think” was pronounced “Sink” by Fran and more like “Tink” by me. Our waitress took a while to understand the fact that we are not FROM Europe and now living in the Indiana. Rather, we are both Midwestern Americans who are speaking with very strong foreign accents. She guessed Fran as more Eastern European and me she placed as Irish. LOL. Anyway our waitress Cloe was kind enough to snap our photo with my camera.
Given that there have been reportedly less than one hundred cases of Foreign Accent Syndrome ever reported worldwide and that so very few people, including medical professionals, have even heard of the affliction, I believe our budding friendship is an answer to prayer! It was encouraging to talk to someone who understands what it feels like to not have the voice/accent you have had your whole life. I feel greatly blessed by meeting her, and especially since she is within short driving distance.
We may have discovered a new comedy team in the making as well. We thoroughly entertained Fran’s daughters and husband with our silliness as we each corrected the others accent. Though our accents have some similar qualities, Fran sounds more Eastern block European (more Russian), whereas my accent sounds more French mixed with Norwegian. Her husband said that we sound like we are from different parts of Europe, but European all the same. I think it was an encouragement to her family as well as we were able to lightheartedly share our stories. Her family was able to see another person with the same thing happening so that they could feel less alone in the peculiarity of it.
Below is the link to a video that her daughter Celia shot of us. Please be kind to us as this was totally impromptu shooting so I am not wearing any make up and am looking more unkempt than I would have liked. However, the spontaneity of the shoot makes it too good not to post.
Foreign Accent Syndrome Friends
Now, I really would like to hear what you think about this post so please leave a comment. Thanks.
I am going to tell you the tale of yet another unfortunate event in my life. I think you will agree that I have more lives than a herd of cats.
The chicken was almost done in the oven when Steve arrived home from work. I glanced behind him standing at the sliding glass patio door into our backyard. There I saw a threatening sight; a dozen robbins were flying in and out of our Northern Star dwarf cherry tree. “Hey, get out of there!” I yelled at the winged thieves, “those cherries are almost ripe!”
The next few moments I was in a whirlwind as I grabbed a tree cover, some clothes pins and the step ladder to quickly cover the tree before the supper was done cooking. It would only take a few minutes, and then the little bandits would be at least deterred from depleting the ingredients for our future cherry pies.
Because of the metal rod in my left leg and fused ankle, I was barefoot to make sure that foot placement was solid and centered on the nice wide treads of the step-ladder. I had just finished attaching the half way point of the cover. When, suddenly, I was slammed into the ground.
There I was, face down in the lawn, trying to assess what just happened. My bell was rung! You could say I was seeing birds of a different variety now… the kind that join the stars around your head when you are hurt badly. I had apparently hurt my left side pretty badly, the ladder was contorted on the ground beside and beneath me, big bruise to the left thigh (that’s gonna be ugly), wrist, arm, shoulder all hurting from the fall, but then I saw my left foot… it was bleeding badly. Because my left ankle does not flex AT ALL, and the little toes on that foot curve under so badly, one of the toes evidently caught an edge that hyper extended it to the point of ripping or cutting the flesh as it came in contact with the hard metal.
“I am hurt”… correction, “I am hurt badly” and “I gotta get into the house NOW” were the words coming out of me as I limped toward the door as fast as I could. I grabbed the dishpan full of cold water that we keep right inside the door for cleaning the dog’s feet when she comes inside and was happy that I had just recently cleaned it well and that it was full of cold water. I stuck my foot right in there and watched the water turning dark red. It was like a scene out of the movie “The Ten Commandments”.
I called Steve into the kitchen, he was mad as he ran to get the first aid kit. Then I called in our daughter Michelle to get some ice on these big bruises. Then Steve doctored me up by pouring Hydrogen peroxide over my bleeding foot that was now up and over the edge of the kitchen table. It really hurt a lot as he straightened those little toes to get it clean in there.
I believe I lost consciousness for a tiny bit shortly after saying “I feel very dizzy … sick … not good.” I was sitting in a tall backed kitchen chair and rocking my head with the pain. That is something I do naturally rather than cry. However, I came too suddenly as Michelle was straightening up my head and trying to put a pillow behind it. As I was coming to, I realized that I was blowing out the pain and drooling, kind-of spitting up. Woah! I guess I am hurt worse than I thought. There was no way I was going to be able to drink the water Michelle was offering me. “No” was my answer to her offering me some Aleve pain killer. I do NOT want to thin my blood any more or make the bruising worse.
After Steve packed the cut with topical antibiotic and pressure of gauze and tape. They helped me get situated in the living room recliner for the night. Foot elevated, cleaned, bandaged, taped and now enjooying the comfort of pressurized ice water inside my cryocuff. Ice bag ace-bandaged to the giant bruise on my left thigh. AND I wrapped another little bag of ice over my left wrist and hand which I have at least badly sprained. I elevated that up against my chest as I laid my head back against the chair with a very cold wet towel behind my neck to ease the neck/head pain and nausea.
I am in PAIN!! I did NOT go to the ER… we were doing about everything they would do anyway. Plus, I have had more than my fill of emergency rooms and hospitals lately. I did call my family doctor today and have an appointment to see him tomorrow just because this was such a bad fall and did a lot of damage. Plus, I may need to get put on some antibiotics for that deep tear/cut at the base of my toe.
You know, if I didn’t know better, I’d say I was cursed!! If I had been careless it would have been one thing, but I took several safety precautions as I endeavored to save our cherry crop. Who could plan on the old ladder just decideing to break. The greatest safety tip I tell everyone is NEVER EVER climb a ladder or swim when there is no one else around. This time that safety tip surely saved me big time.
Moral of this story: “A bird in the hand (or prevented from your cherries) may NOT be worth it!!”
Prayer requests: for those of you who follow me regularly, (1) Pain to ease (2) I have an EEG already scheduled at the hospital for Friday (3) I cannot use my crutches to stay off my left foot to heal because my left wrist and shoulder and collar bone area are all swollen/bruised.
After all of this, I was a bit upset to see that my husband took down the cover net I had already placed halfway on the tree. So the robins have free rain of my cherries again : ( Oh well, they need to eat too I guess.
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