More Than Lip Service
This last week I have had a few more noticeable set-backs. As the clouds and wind build while we enter the Autumn season, there is more cold, dry air and pressure changes and less sunlight. All of this is the “perfect storm” of symptom exasperation when it comes to chronic pain and fatigue.
What I have also been learning is that it seems to also make my foreign accent much harder to correct. Prosody (word order) as well as pronunciation and word finding ability all suffer when I am more tired.
It is also notable that when I do not spend the day talking to myself (to the amusement of the dog and parrot, I’m sure) while my family is away most of the day, I find that my speech is MUCH worse when they get home.
I have recently made a renewed commitment to reading through my Bible over the entire year and am in Isaiah and 1 Timothy. I also use that time to read aloud and let the foreign accent show it’s full force as I read scripture. The FAS naturally adds a different feeling while reading as the emotions are different as the accent adds a unique flavor which is way different than my usual speech used to be. My speech therapist says that the reading aloud is good for helping create new neuro-pathways as well. It’s a win/win!
The adage, “practice makes perfect,” may not really apply here, however, practicing out loud is how I actually hear the processing of the words and am then able to note it, work on it with some tricks to more closely correctly pronounce it, repeat and then move on.
Here is an example: The word: people. When I pronounce this word, it comes out naturally sounding like Pee–poo0. I remember Terri Stacey actually giggled at that one. The ‘l” sound just won’t hop into the right place at all. So I developed a trick. When I say the word “people,” I think about being behind an apartment door when someone rings the bell. I look through the PEEP-hole to see the people! By visualizing this trick, I can say PEEPhole and it more closely resembles “people”. It seems like a lot of work, but it does work for me.
Then there is my “POOL” / “PULL”/ “POLE” –trick. When I tried to say “pull,” it natually would come out Poo-wel. So in order to say the sentence “Please pull the door open,” I now FIRST say in my head pool/pole/pull… the two extremes of the vowel plus “L” sounds help me then settle into the middle sound which is the correct one I want.
Today I worked on the word “SCHOOL” which had a very similar pronunciation, but was much harder for me to develop a trick for. I finally settled on this: when I know I’m about to say “School,” I substitute “SK-wool”, while barely even touching the “w”. I envision a sheep which has a price scanning SKU on it. SK-wool. “Where are you going to school?” Weird huh?
Though there is a LOT of processing happening as I try to “fix” the pronunciation of words, the stress given them within the syllables of the word and within the words of a sentence, I am in affect, developing “tricks” to use on the tricky words (those that give me the most trouble). I joked with a friend at church, I sometimes feel like I’m a walking Tower of Babel.
However, that tower was built as a testament to what God could do and it was God who created the different tongues so that the people were forced to scatter. I find with this Foreign Accent Syndrome affliction of mine, people actually flock to me. People continue to ask the question “where are you from?” and make the statements “I love your accent. I could listen to you talk all day.” The gatherings that come to me allow me to testify. This is what Foreign Accent Syndrome looks like in me. Then I sing a tiny bit, so that they hear my “real” voice. The jaws drop. Then, while their mind is open to the wonders that they just witnessed, the door is wide open for me to share with them how we are “fearfully and wonderfully made.”
More than ever before, I see how I MUST work to correct my pronunciation of the word “people,” because it is people I want to reach. I am learning, it is not so much the pronunciation that is a hinderance, it’s that I might not say anything at all to another person about the good news of the Gospel and the glorious hope that there is right now. It is not so important HOW I say it or about my fear of what the other person might think of me. What’s most important is that there is something of great value to communicate, so don’t wait. Who doesn’t want to receive an encouraging word and a smile? Or a nod and a statement like “oh, I’m sorry for your trouble,” or “I care about you. How can I help?”
Take My Life
I have chronic pain and chronic fatigue which means I quite 
often am not allowed by my body to do what “normal” people can do. I understand what the apostle Paul said about buffeting his body, as I regularly must force myself to keep moving when my body literally wants to shut down. Lately, the fatigue has really brought my daily functioning to a prolonged low.
I’m reminded that God uses even me as a “weaker vessel”. Not that I would chose to be weak and unable to be more productive by man’s standards. No way! Like the Apostle Paul asking to have his “thorn in the flesh” removed, God has chosen to not miraculously remove my affliction. Maybe it is to protect me from the sin of pride through accomplishment in my own power. Whatever the reason, I have seen how God can use me this way; flaws and all. For I KNOW it is nothing that I am bringing to the table. It is truly ALL God.
As it says in the Bible: 2 Corinthians 12:9-10 (NASB) 9And He has said to me, “My grace is sufficient for you, for power is perfected in weakness ” Most gladly, therefore, I will rather boast about my weaknesses, so that the power of Christ may dwell in me.10Therefore I am well content with weaknesses, with insults, with distresses, with persecutions, with difficulties, for Christ’s sake; for when I am weak, then I am strong.”
One of my all-time favorite attitude adjuster verses is Phil.4:8-9.
“Whatever things a true, honorable, righteous, pure, lovely, of good repute, excellent or worthy of praise, let your mind dwell on these things.”
I do hope I quoted that correctly, I have memorized it by using the memory minder “THoRP L GREWP”.
So, when I get discouraged by a situation, or set of circumstances, I purpose in my heart to look for the good. It IS there somewhere. I run through the list and go treasure hunting.
I want to end today’s post with some words from a favorite hymn called Take My Life and Let It Be “Take my life and let it be; consecrated, Lord, t0 Thee. Take my moments and my days, let them flow in ceaseless praise, let them flow in ceaseless praise.
I may not have much, but what I do have is all yours, Lord!
It’s not working right!
Okay, tonight’s great project just obtained the title of FLUB. I had our Patagonian Conure (parrot) on my shoulder and video cam recorded a wonderful update about all that has been happening regarding my Foreign Accent Syndrome journey. I attempted to send
it from the website I created it on, after viewing it for accuracy. . . and POOF! It was Gone!!!
It is now so late at night that I simply cannot continue. I must go to bed. Plus Oliver (the parrot) is in bed and he added that extra something to the video.
Therefore the irony of this post which started out to incorporate news mostly delivered by a nice little video, is now Kaput!!! As today’s geeks would say…”FAIL”.
It is funny that the very thing that I was reporting on is that my brain is not working right, my speech is still not right, and now, even my attempt at posting it on the internet is not right. I can take a hint; it’s bedtime. Just like so many of life’s other frustrations and attempts to stop me in my tracks, this is not a brick wall to stop me… rather… it’s just another hurdle to jump.
However, this hurdler is going to reenergize with some sleep before we go at it again.
Cartoon from http://www.runningromans.com
FAS Friends
I met with a new friend tonight who I call “Fishers Fran.” We both have Foreign Accent Syndrome, (an extremely rare
Eastside Ellen and Fishers Fran shake up a local Steak 'n' Shake. ---Photo by waitress Cloe.
medical condition that causes a person to speak with a foreign accent that is not their own) and live in the Indy area.
Fran had some friends tell her about hearing me on the WIBC 93.1 FM radio spots I’ve been doing over the last couple Tuesday mornings by invitation of the Morning Show personalities Terri Stacy and Big Joe Stayzniak. Her friends told her that she must listen. Then Fran took the initiative to call the radio station and they passed along my name and told her I was on FaceBook where she sent me a message.
Last Tuesday evening when we first spoke by phone, Fran had her normal voice. Her foreign accent came on suddenly for her along with left side neuromuscular symptoms back in 2005. Unlike me, her regular voice has returned, but she does have episodes where the accent returns for a few days. In fact she recently was interviewed about her Foreign Accent Syndrome story in an article for the April Issue of a magazine that is popular with the Catholic faith. I am sorry that I do not have the publications name right now, but I will edit this post when I have it.
Today she called to say that her voice has “flipped” so that she has the accent again. Her voice does have strong similarities to my own, but is definitely different. She can say some long “A” sounds that I cannot, and I can pronounce the “SK” sound that she cannot. So it was very enlightening as we met at a northeast side Steak and Shake for a friendly supper. Many patrons stared as we spoke and laughed together. Our waitress asked the inevitable “where are you from” question. To which we both smiled and replied “where do you think?” “Think” was pronounced “Sink” by Fran and more like “Tink” by me. Our waitress took a while to understand the fact that we are not FROM Europe and now living in the Indiana. Rather, we are both Midwestern Americans who are speaking with very strong foreign accents. She guessed Fran as more Eastern European and me she placed as Irish. LOL. Anyway our waitress Cloe was kind enough to snap our photo with my camera.
Given that there have been reportedly less than one hundred cases of Foreign Accent Syndrome ever reported worldwide and that so very few people, including medical professionals, have even heard of the affliction, I believe our budding friendship is an answer to prayer! It was encouraging to talk to someone who understands what it feels like to not have the voice/accent you have had your whole life. I feel greatly blessed by meeting her, and especially since she is within short driving distance.
We may have discovered a new comedy team in the making as well. We thoroughly entertained Fran’s daughters and husband with our silliness as we each corrected the others accent. Though our accents have some similar qualities, Fran sounds more Eastern block European (more Russian), whereas my accent sounds more French mixed with Norwegian. Her husband said that we sound like we are from different parts of Europe, but European all the same. I think it was an encouragement to her family as well as we were able to lightheartedly share our stories. Her family was able to see another person with the same thing happening so that they could feel less alone in the peculiarity of it.
Below is the link to a video that her daughter Celia shot of us. Please be kind to us as this was totally impromptu shooting so I am not wearing any make up and am looking more unkempt than I would have liked. However, the spontaneity of the shoot makes it too good not to post.
Foreign Accent Syndrome Friends
Now, I really would like to hear what you think about this post so please leave a comment. Thanks.
Friends: Angels in the flesh
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- Angel Alex and his halo.
This is a good opportunity for me to express my thankfulness for really good friends of such calibur that they can best be described as angels in the flesh.
One such friend is Alex Conner. Just tonight he used a video conference call to help me set up my Ellen5e.com site that I’ve wanted to get going for over a year now. Alex is a very talented Indy Christian Geek who really knows all the bells and whistles of the computer programming and code world. But more than just an extremely technologically gifted young man, he is a guy who treats others with the convictions of a true Christ-follower. He makes the extremely above my head concepts of attempting to understand the workings of a computer much more understandable. He definitely is gifted with super-human patience and a unique ability to explain things in a way that a person can grasp the meaning without feeling talked down to.
I went from having a somewhat depressing day of rain and frustrations, to actually being able to get something very substantial done… or at least a lot further along in its development. This is because of sacrificing of time for my benefit by one of my personal angels. Thanks Alex!! You are my angel for the day… probably much more like a week or month.
WHAT IT WAS VS. WHAT IT IS
I have had quite a few brand new friends who I have met via newmedia and on the internet who have never heard me talk before the “ATTACK” so when they hear me speaking on the recent video clips they do not think anything about my heavy weird accent.
ASIDE: By the way the votes for “What kind of accent do you think it is?” is leaning very heavily toward French and Swedish/Norwegian. One good friend has accused me of being a Russian spy. And one of my 4H dog club kids thinks I sound British like Victoria Stillwell of dog training fame.
BEFORE: To help those people who have never heard my “regular talking voice” here is a clip of me conducting an interview of an intercity ministry. http://www.youtube.com/watch?v=1JQjncoi9jc You will notice some hesitation in my speech as I am thinking of the questions off the cuff, but even a very untrained ear can tell I do not sound like the same person.
AFTER: Now… compare this to my most recent little clip from last night
http://www.tokbox.com/vm/b6ae3opqguin
You hear a very noticeable difference don’t you??
Friends, students and family are helping me to laugh about it, because if I don’t stay light-hearted enough it will make me want to cry.
THIS IS NOT ME!!
My regular voice is gone! Instead I am having to hear these weird accents coming out of my mouth. STILL, I am extremely thankful to have any voice at all. Can you imagine it?
I have had friends call me on the phone, and then just about hang up as they say “I’m sorry, I have gotten the wrong number.” I go into a quick “wait a minute! it is me, Ellen, don’t hang up!” Then I must give them some kind of fact that a stranger wouldn’t know, to convince them it is ME!! It IS me!!
It has now been a week and a half since the first numbness showed up, and almost as long that I have been speaking with a foreign accent. I sometimes get a bit down about the situation. No doctor has an answer about what is going on — we just don’t see any obvious signs of stroke or any bad tumor or anything on CT or MRI.
The speech therapist I saw on Wednesday was thinking maybe Bells Palsy, but some of the symptoms do not jive. I have just started finding something called “Foreign Accent Syndrome” mentioned on the web. So I will continue to research as I await my neurologist appt. on the 29th.
I praise God that He never gives us more than we can handle. I am being forced to
(1) speak funny OR (2) shut-up. Those of you who know my passion for communication (talking with people and about the Gospel) know which option of those two that I am taking.
Here are some things running through my head a lot lately:
“Be still — and KNOW — that I AM GOD!” –
We are fearfully and wonderfully made; tho’ this is scarey it IS facinating!
I must laugh because if I take it too seriously I will cry.
How much faith do I really have?
I choose to believe that God IS in control of even this.
What do you think about this? I REALLY want to know.
I am seeking any advice, ideas or answers anyone might have.