Recently I have been amazed at just how small the world seems as I am now able to make more friends who want to learn more about foreign accent syndrome almost daily via the power of the world wide web.
If you have been following me for any amount of time, you know how frustrated I am by the limited amount of information about Foreign Accent Syndrome. I had a bit of a breakthrough last week as friends and Tweets pointed me to a newer case that has been widely publicized regarding a lady in the UK suddenly speaking with a Chinese accented voice after suffering a migraine.
The BBC did a story, CNN and other news articles suddenly popped up all over the place. I really believe I know how she feels as she is tired of the novelty of the fact that she sounds different. I know what she means when she says that she want her “real” or “old” voice back. As a result, I sought to contact Sarah and have since connected. I look forward to speaking with her by phone sometime soon, but in the meantime we are in touch across the ocean and time zones via internet.
Then, there was a television program that aired on the Science Channel, but which we don’t have that broadcasting channel. The title of the episode is called “Secret Life of the Brain: Losing Myself.” (If you discover a link or another broadcasting please let me know in the comments). Though I have not seen it, apparently, it touched on Foreign Accent Syndrome and raised a lot of interest from people who had never heard of it before. Twitter was alive with people who couldn’t believe what they were hearing.
Through those Tweets I discovered some new contacts, one of which is a French speaking writer of medical papers who writes “The Brain From Top to Bottom” (here is a link). Those writings helped me learn even more about the brain and how it functions or dysfunctions.
With this sudden influx of interest maybe there will be some advances in the study and dissemination of scientific research. We can share in the hope of knowing that people are taking the matter seriously. We can share our struggles and insights to encourage one another. That would be an answer to the prayers of the few who are having to endure living with such a rare disorder that so profoundly affects their identity, that is not easily explained and to which there is no accepted treatment or cure.
Since we have used the internet to shrink the world, maybe now it is time to use that same mode to make awareness larger in the world.
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Thanks for visiting the site : )