Hey everyone!Â I have some great
news… first off, earlier in the year a young lady who contacted me via Twitter, then email and eventually interviewed me, wrote a research paper for class and blogged about Foreign Accent Syndrome. I will attach the link to it since it was so good.
Then this evening I had a cousin message me that a big college professor is fascinated and may be using some of my materials for his class!
This is encouraging as so many more people are helped when more educators teach the truth about that Foreign Accent Syndrome is a real, neurological, brain malfunction and press for further research and proper diagnosis and treatment.
I really hope that the information that V and I are both eager to share with others will go beyond raising an interested eyebrow of the curious. Hopefully this will ignite further study in the medical and scientific communities, and most especially in the areas of neuroscience, brain and language. The more people that learn the truth from those of us living with Foreign Accent, the faster and better will be the scientific development of hypotheses, the greater impact that might be realized to benefit those who have FAS and those as yet undiagnosed.
On top of that I have talked by phone with two brand new cases that are now people who are feeling a bit less traumatized by instantly feeling understood by speaking with me and knowing they are neither alone or crazy.
There are so many more people to reach and teach 😉
To those who know about the unpredictability of autoimmune diseases, it comes as no surprise that there are days that I have deemed as “Frisbee Squirrel” days. Those days when all previously made plans must be set aside to deal with a body in non-compliance. When the weight of one’s extremities add boat anchors to the weight of the torso sinking into the mattress, it requires major effort to move. Getting upright to walk a few yards to the toilet and back is akin to executing a marathon. Although, praise the Lord, these days are fewer than past years, I do occasionally get side-lined. Today was just such a day.
I had great plans of getting some painting done on a big set project that has a hard deadline. I did prep work yesterday, so I was ready to execute some productivity today. Awwwwk [buzzer sound]…not gonna happen!
Exactly one day after proclaiming that I do trust that God is in charge of everything in my life…And that ALL of it is for my good and His glory…And that I can actually rejoice in trials because of the fact that God uses trials to make me more like Jesus; here I am “grounded” so to speak. My bones have all the strength of a pile of dust. I am fighting to keep my eyes open and my thoughts of the simplest task in a straight line.
It became obvious that I was forced to resign myself to another lost day. The cold, rainy day outside was adding to the gloom that wanted to throw a big pitty-party to the frisbee squirrel who was of no use. However, God was gracious to me!! Let me tell you how.
Last night’s growth group study, focussing on the Bible book of Ephesians, dealt with God’s gifting each of us with what we need to help grow ourselves & others up in Christlikeness. A godly advisor & another friend each independently spoke of being happy for trials. In my morning Bible reading God’s Word reminded me that God is the strength of my heart. In the midday, I received an unexpected facebook tagging of a very good article about Women’s ministry being more than just casseroles or being a Proverbs 31 woman. And finally, my handheld device allowed me, even while too weak to get out of bed, to follow-up on people who are seeking help with Foreign Accent Syndrome.
That series of events helped me quickly shift off of the feelings of defeat to the intentional pursuit of just doing something…any little thing…that I can do.
As a result, today I was blessed to be able to bring great relief and comfort to two souls that are literally in different parts of the world from me, and each other. Yet all three of us know the pain, suffering & loneliness associated with having such a rare condition as Foreign Accent Syndrome. The difference is, I know how to use social media and the world-wide web to reach out to find those who are not getting properly diagnosed or help in the ignorant or uninformed medical community. I have been blessed to be able to speak with many different people about many different things in straightforward and understanding manner. I care for others and they sense that early on. God allows me to be comfort and His love for them.
It is so humbling to realize that God actually uses ME!
God actually uses me, at my absolute lowest of strength and power to have impact in the lives of others! Is that not amazing?!
So, today as I look back on what I thought was going to be another wasted day in which I was just taking up resources, God instead used this day to teach me a new perspective.
What I thought was a “Frisbee Squirrel” day actually turned out to be a “playdough” day. >> Rather than giving in to the notion that I was of no more use than a dried up dead squirrel and all the negativity associated with that, I was given a different outlook.
God allowed me to be truly flexible; to accept that although things were not as I had planned, that it could be okay.
Allowing myself to be molded by my Maker was very rewarding. In fact it was beautiful. I could relinquish all the strain of trying to “make” things happen and instead allow myself to be moved and shaped as He saw fit, knowing that would guarantee a good result. In fact: the best result was assured. It truly left a lasting impression on me and on others.
As I look back on today, I rejoice even in the not-idealic circumstances of my day. I was able to make a new friend in Scotland and another in Chile who actually cried with relief to hear from me…me?! (a nobody Frisbee Squirrel bedridden in the Midwestern United States). I tell you God never ceases to amaze me. Amazing love; how can it be? It was a good day to be playdough.
Here is a link to the documentary which aired in the UK last Tuesday night on their national BBC-1 network. It is called “The Woman Who Wake Up Chinese” and stars my friend Sarah and a bit of Kay as well, some doctors and specialists and is EXCELLENT at describing the rarity of Foreign Accent Syndrome and how profound an affect it has on a person and those that love them.
Although the original episode cannot be viewed from the BBC site unless you live in the UK… there is a place to watch it free via YouTube. On YouTube you just search “The Woman Who Woke Up Chinese BBC Full) and you will see about a 43 minute video that you can watch from there. The entire video was closer to a full hour, so there is probably a few more minutes which we cannot see, however, the documentary is incredibly well done and is already having a profound effect on the WORLD! YES! More and more people are being exposed to Foreign Accent Syndrome’s existence which will help those not yet properly diagnosed, families and friends of the sufferers and especially the scientific community where so much of the doctor’s ignorance regarding FAS has actually done some harm to the people who don’t understand what is happening to them.
Since this videos airing, there has been a HUGE influx to the public Facebook Group called Foreign Accent Syndrome Awareness Group which I administrate as well as this Ellen5e.com site. This is very good for getting people informed. I cannot tell you how many people I have talked to in the last four and a half years who have been misunderstood, treated poorly and suffered greatly because of ignorance of so many people in regard to Foreign Accent Syndrome. It IS REAL! Â It is VERY rare! And it needs more study by the medical community because of all that may be learned about the human brain and our ability to communicate.
Please take the time to watch this, and I would REALLY love to hear from you as to what your reaction is.
It is exciting for those of us who work together on the only known group for people who have Foreign Accent Syndrome (via a PRIVATE Facebook group) to be able to see the way in which those who are new to this journey will have better understanding and support than those who came before. God is really at work in the lives of people all over the world… right NOW… and I tear up with thankfulness that God is using some of us to offer comfort to others as only we can.
Here is a verse from the Bible that I feel explains how I am able to embrace the challenges in my life as a way of God preparing me to be of greater use to others.
2 Corinthians 1:3-7 New American Standard Bible (NASB) Â Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction so that we will be able to comfort those who are in any affliction with the comfort with which we ourselves are comforted by God. Â For just as the sufferings of Christ are ours in abundance, so also our comfort is abundant through Christ. But if we are afflicted, it is for your comfort and salvation; or if we are comforted, it is for your comfort, which is effective in the patient enduring of the same sufferings which we also suffer; and our hope for you is firmly grounded, knowing that as you are sharers of our sufferings, so also you are sharers of our comfort.
I hope that this verse will become an anchor of steadiness to you as you go through various trials in your life. Yours may not be FAS, but ALL of us have troubles in this life. We cannot control their coming many times, BUT, we can control how we will respond.