Hey everyone!Â I have some great
news… first off, earlier in the year a young lady who contacted me via Twitter, then email and eventually interviewed me, wrote a research paper for class and blogged about Foreign Accent Syndrome. I will attach the link to it since it was so good.
Then this evening I had a cousin message me that a big college professor is fascinated and may be using some of my materials for his class!
This is encouraging as so many more people are helped when more educators teach the truth about that Foreign Accent Syndrome is a real, neurological, brain malfunction and press for further research and proper diagnosis and treatment.
I really hope that the information that V and I are both eager to share with others will go beyond raising an interested eyebrow of the curious. Hopefully this will ignite further study in the medical and scientific communities, and most especially in the areas of neuroscience, brain and language. The more people that learn the truth from those of us living with Foreign Accent, the faster and better will be the scientific development of hypotheses, the greater impact that might be realized to benefit those who have FAS and those as yet undiagnosed.
On top of that I have talked by phone with two brand new cases that are now people who are feeling a bit less traumatized by instantly feeling understood by speaking with me and knowing they are neither alone or crazy.
There are so many more people to reach and teach 😉
I recently found out after a blood test that I am very low in Vitamin D. The doctor told me to take a supplement of Vitamin D3 — like 4 times the dose I was already taking! Wow! I knew that I am a gal that likes my sunshine and that Vitamin D is made by our bodies utilizing sunshine. Therefore, the winter months, having less sunshine because the hours of daylight are less, as well as the fact that I usually don’t spend a lot of time outside in my shorts outside in sub-freezing temperatures, would naturally mean a decreased amount of Vitamin D in me.
What I DIDN’T know was just how very many problems can stem from not having a sufficient amount of Vitamin D in our body. I learned a LOT by doing a little research on Vitamin D online. The most interesting aspect of it all is that Vitamin D is NOT a vitamin . . . it was misnamed . . . it is actually a hormone and therefore very important in the regulation of body function. Additionally, Cholesterol is needed by our skins production of vitamin D as it reacts with sunlight. When vitamin D levels are low the body will naturally make more cholesterol to be available for conversion to the needed D. Â WOW! What a wake-up call. Â So the doctor finds that my cholesterol level is high, so he prescribes statin drugs which reduce the cholesterol and my vitamin D level goes down and then all these problems get even worse. Wow! Additionally, not all Vitamin D supplements are the same. Â I mean to say, Vitamin D3 is the proper form for us humans to take. When Vitamin D was first studied and named it was done so with testing on rats which are nocturnal mammals. Since they don’t produce the vitamin D with the help of sunshine like we do, it was believed that Vitamin D was obtained solely by diet; thus the term Vitamin… as in, coming from a source outside the body.
Then too there is the fact that we humans have different skin pigmentation and live in different climates. Those of us who live in areas that experience Winter season with fewer daylight hours and cold temps are obviously not going to have the same Vitamin D levels as someone who lives close to the earth’s equator and temperatures conducive to more time spent outdoors in sunshine.Â On the contrary, our lifestyles of less time outdoors and more times inside of buildings under florescent lightsÂ and in front of computers does nothing to bolster our stores of HORMONE D.
I came upon this fabulous wealth of information byÂ Stasha GomÂiÂnak,Â M.D (a neurologist at Tyler, TX) when I listened to a lecture she gave on Sleep, Chronic Pain and Hormone D. Here is a videoÂ Dr. Stasha Gominak Discusses Sleep & Vitamin D (all 5 parts). Listening to all of the video took about an hour and a quarter but it was subdivided into five parts so one could watch or refer to one section at a time if that were easier. I watched it as a whole as well as took note of the power point slides that she gave listing resources and references. This was a professionally done lecture which was communicated in such a way that a layperson could understand. My understanding by what she said during the talk, this was given to a group of caregivers and not just doctors. Therefore it is not full of medical jargon that is beyond a person’s comprehension. Rather it is a very logical account of how HORMONE D is behind so many health problems that many people have today. Â I think it is important to mention that she points out the pioneering work done by Â Dr. Walter StumpfÂ and the name “soltriol ” that he coined for this important biological hormone.
In doing more reading and research I found it absolutely fascinating that D3 has an important role throughout various functions in the body. There are receptors in the heart, the brain, the pancreas, the gut, muscles, etc. There is a direct correlation between insufficient D3 and several diseases: neurological dysfunction, migraines, sleep disturbances and quality, pain perception, chronic fatigue syndrome, fibromyalgia, migraines, acid reflux, diabetes, irritable bowel disorder, heart issues, high cholesterol and high blood pressure, etc. Man!
This all is supported by my own personal experiences. Chronic Fatigue Immune Dysfunction Syndrome came first, then Insulin Resistance, then Fibromyalgia, acid reflux (I blame that on the meds),migraines started after an auto accident, in 2009 I developed Foreign Accent Syndrome, then my cholesterol was too high. Finally, I had neurological abnormalities after being put onto a statin drug. I KNOW it was as a result of being on a statin drug that I suffered a faux heart-attack and then sever muscle weakness to the point of not being able to stand up or walk. Sure enough, after being off of the statin and employing Physical Therapy, I got better within about three weeks. THEN, I discovered several people (including a parent) that had similar horror stories from being on a statin drug. Then I did research online and saw hundreds of similar complaints. There were even commercials on television stating that there was a class action suit whereby statins were associated with causing people to become diabetic, suffer muscle weakness, heart problems, etc. Â I declared “NO more statin drugs for me,” I will use fish oil or krill oil, but absolutely refuse to take that detrimental medication ever again.
Which brings us up to today, I started 2014 with a ten day hellish migraine that wouldn’t go away. Now it’s cluster headaches. Putting together what I have just learned as being the vast number of receptors in our body that NEED vitamin D3 and the fact that I am deficient in it now makes sense. So I have increased my intake of D3 and am going to monitor that with periodic blood tests. Additionally, I’ve learned that Magnesium plays an important role in helping to reduce headaches as does vitamin B.
I am much more informed on the physiology of my body when it comes to Hormone D (soltriol). It explains why I often crave time in the sun and suffer more in the winter. Perhaps a good long tropical vacation is in order.
Let me also recommend Dr. Stasha Gominak’s blog about this subject to you atÂ Vitamin D Hormone: Sleep, Chronic Pain and Headaches. Â I personally am excited to have found this information and am sharing it with my doctors and friends. Experience is an excellent teacher and mine is saying to me, “we may just be onto something here; something that can restore health and eliminate disease! I think the overuse of statin drugs is going to do more harm than good unless people see the importance of the cholesterol / Hormone D balance in our bodies.
NOTE: I am NOT a doctor and hold no medical degree. The information contained here is from my own personal observation and experience. It is intended to simply offer my opinions and point to the opinions of others. If you are having any medical concerns, please seek the care of your physician. Although I have stated my dislike for certain classes of medications, one should follow the instructions of their physician along with their own personal convictions. These are intended to point you to some resources and give you a reason to think about your plan of care and overall health. God bless you on your journey to achieving a better state of health.
PLEASE TAKE THE TIME TO INVESTIGATE THIS FOR YOURSELF. Â I WOULD REALLY LIKE TO HEAR WHAT YOU HAVE EXPERIENCED AND LEARNED ABOUT THIS TOPIC BY SIMPLY LEAVING A COMMENT AND IF WORTHY IN YOUR EYES SHARING IT WITH OTHERS. I believe this has news can have great impact in the world for healthier living.
Here is a link to the documentary which aired in the UK last Tuesday night on their national BBC-1 network. It is called “The Woman Who Wake Up Chinese” and stars my friend Sarah and a bit of Kay as well, some doctors and specialists and is EXCELLENT at describing the rarity of Foreign Accent Syndrome and how profound an affect it has on a person and those that love them.
Although the original episode cannot be viewed from the BBC site unless you live in the UK… there is a place to watch it free via YouTube. On YouTube you just search “The Woman Who Woke Up Chinese BBC Full) and you will see about a 43 minute video that you can watch from there. The entire video was closer to a full hour, so there is probably a few more minutes which we cannot see, however, the documentary is incredibly well done and is already having a profound effect on the WORLD! YES! More and more people are being exposed to Foreign Accent Syndrome’s existence which will help those not yet properly diagnosed, families and friends of the sufferers and especially the scientific community where so much of the doctor’s ignorance regarding FAS has actually done some harm to the people who don’t understand what is happening to them.
Since this videos airing, there has been a HUGE influx to the public Facebook Group called Foreign Accent Syndrome Awareness Group which I administrate as well as this Ellen5e.com site. This is very good for getting people informed. I cannot tell you how many people I have talked to in the last four and a half years who have been misunderstood, treated poorly and suffered greatly because of ignorance of so many people in regard to Foreign Accent Syndrome. It IS REAL! Â It is VERY rare! And it needs more study by the medical community because of all that may be learned about the human brain and our ability to communicate.
Please take the time to watch this, and I would REALLY love to hear from you as to what your reaction is.
It is exciting for those of us who work together on the only known group for people who have Foreign Accent Syndrome (via a PRIVATE Facebook group) to be able to see the way in which those who are new to this journey will have better understanding and support than those who came before. God is really at work in the lives of people all over the world… right NOW… and I tear up with thankfulness that God is using some of us to offer comfort to others as only we can.
Here is a verse from the Bible that I feel explains how I am able to embrace the challenges in my life as a way of God preparing me to be of greater use to others.
2 Corinthians 1:3-7 New American Standard Bible (NASB) Â Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction so that we will be able to comfort those who are in any affliction with the comfort with which we ourselves are comforted by God. Â For just as the sufferings of Christ are ours in abundance, so also our comfort is abundant through Christ. But if we are afflicted, it is for your comfort and salvation; or if we are comforted, it is for your comfort, which is effective in the patient enduring of the same sufferings which we also suffer; and our hope for you is firmly grounded, knowing that as you are sharers of our sufferings, so also you are sharers of our comfort.
I hope that this verse will become an anchor of steadiness to you as you go through various trials in your life. Yours may not be FAS, but ALL of us have troubles in this life. We cannot control their coming many times, BUT, we can control how we will respond.